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Trigeminal Autonomic Cephalalgias Section Meeting- Scottsdale
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Meeting to discuss section initiatives, updates, planning, etc.

 Export to Your Calendar 11/18/2017
When: 11/18/2017
12:30 PM
Where: Desert Suite 3
JW Marriott Desert Ridge
5350 E Marriott Dr
Phoenix, Arizona  85054
United States
Presenter: Dr. Shivang Joshi, Chair
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Section Meeting: TACs 11/18/2017

Agenda

Chair/Co-Chair Introduction:

Shivang Joshi

Brian McGeeney

 

Objectives for Meeting

 

1. Bring like- minded individuals together (MD, PA, NP, Research coordinators, Pharmacists etc..)

2. Solicit feedback and ideas for this group

3. Discuss report of the cluster buster meeting attended by Dr. McGeeney

 

 

TACs SIS Purpose

Unmet needs

TACs like Cluster are the most painful headache disorder

Limited research

Limited therapeutic agents, still

 

 

Some possible goals for the group:

 

1. Education

            a. Education for providers

                        1. post items on forum here, such as informational pieces on oxygen

 

            b. Cross sectional pre-meeting course proposals

                       

2. Publication

            a. review article on devices and CH….CME

            b. NIH hungry for CH studies

 

Bridging therapy for CH.

 

3. Advocacy

            lobbying

 

4. Resource

            Advertise CH studies

           

5. Involve Patients

Cluster Busters (create a link with a patient/provider organization) (McGeeney)

What do patients want from us?

Do I have cluster?

Remote learning sessions online?

 

Open discussion and follow up:

 

 

 

Oxygen video

 

Letter of medical necessity

 

Twitter group for Cluster

 

Visibility about TAC  Section

 

Cross sectional communication and projects